[nelly]

Yes, they have identified some of the genetic components, but certainly not all.

I’d strongly suspect that these days my Gran would get a diagnosis, and my mum has a lot of traits but probably not diagnosable, her youngest sister is certainly a possibility too.

With regards to this also me and my husband have talked about starting our own family, is it possible if we have a son he too would have this? it isn’t sex linked so it would not matter if you had a son or a daughter?

[nelly]

I suffered terribly when playing netball in winter. I’d get to the 3rd quarter and I could barely catch the ball!! My hands are awful, more so than my feet. I don’t bother taking anything for it but ginkgo biloba is supposed to help symptoms.

I find my main difficulty is changing rugs/doing up buckles, I just about managed to put a bridle on the other day but it was tricky. I get the full on white fingers followed by the pain of it returning to normal.