Reply To: Stressed about health issues

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So sorry you are having such a dreadful time. That’s a lot to be dealing with at your age. I found myself in a very similar situation at a young age- I became very unwell at the age of 11 and never fully recovered. I’m now 33 and was eventually diagnosed with an autoimmune disorder that they believe had been the cause of everything all along. My immune system attacks various parts of my body – organs, connective tissues etc and causes me to be very unwell on an almost daily basis.

I am just about able to work part time but I take a lot of medication to get by. Fortunately (or unfortunately, depending on how you view it!) I don’t know much different, as I’ve been so unwell for so long now. So I don’t actually really remember life pre-illness and this makes it easy for me to just accept it.
The only advice I can offer is to find out exactly what you dealing with and try and discover a routine that works for you. I learnt a long time ago that I’m on my own with this. I visit my consultants regularly, but they can offer no cure or solution and I know I will live this way forever, however long that may be. I’m ok with that, but I do worry what will happen to me when my parents are no longer here, as I have to rely on them so much.
When I was a teenager, I used to wonder why this happened to me, but now I don’t. I wouldn’t change what happened because it’s made a stronger person than I could have ever been otherwise. I miss out on a lot… and I’m often in bed by 8pm at night because just getting through each day is hard.

Look after yourself, it’s perfectly natural to feel worried xx